Affiliate links may be used in this post and if so I will receive a small commission at no extra cost to you when purchasing from my site. I’m also part of the Amazon Affiliate (Associate) program where I earn a commission from sales made through my affiliate links. Find my full disclosure policy.
I know medical gaslighting is a trendy buzzword but it’s an important topic to discuss and not just ignore because it may be seen as overused by some.
I’ve experienced medical gaslighting and have had medical trauma from it. I am leery of doctors and specialists and I don’t trust that ERs will do anything for me unless I broke a bone or am having a very obvious heart attack.
I can’t even tell you how many times I was told I was fine, I’m just tired, I’m just a busy mom, I’m just anxious, it’s a panic attack, I’m just dehydrated before I was finally diagnosed properly with Lyme disease and co-infections.
Just because your labs are fine doesn’t mean you are fine. And just because an MD can’t figure it out doesn’t mean there’s nothing to be figured out.
So many of us in the Lyme community have experienced medical gaslighting on top of being misdiagnosed with other things such as MS, Lupus, Fibromyalgia, and Chronic fatigue syndrome to name a few.
I have very little trust in the medical community until I’m established with an MD and trust begins to grow with that particular MD.
I’ve been let down time and time again by the medical community. It’s really sad because you’re often brought up to believe that doctors are there to help you when you’re sick, you’re brought up to blindly trust them, take them at their word…
I don’t anymore.
Oh yes, there are plenty of good MDs out there but, especially when it comes to the Lyme disease community, doctors that understand Lyme and will treat you, or even know how to treat you, it’s few and far between.
And, that is why I’ve been with my ND (naturopath doctor) for several years because he is brilliant, he works so hard to figure things out and often does, he believes me and in me, and he listens to what I have to say without blowing me off. I trust him and that is invaluable.
I hope that if you’re sick or ever get sick with something chronic or mysterious you have a better experience than I’ve had. Because the fact is, medical gaslighting is real.
Further reading about medical gaslighting and specifically when it relates to Lyme disease.0
Hi, I’m Nell. First, I’m a wife and mother, and a believer in Jesus. I’m also a writer of words, maker of art, and chronically ill warrior. This space is where I document this one big beautiful and flawed life. Essays and diary entries, poetry and art, and peaks into my heart. Welcome.