Affiliate links may be used in this post and if so I will receive a small commission at no extra cost to you when purchasing from my site. I’m also part of the Amazon Affiliate (Associate) program where I earn a commission from sales made through my affiliate links. Find my full disclosure policy.
This is a little off topic from how I typically blog. I like to blog about topics that are helpful and encouraging with a general message you can relate to, but today I want to share a personal update on my migraine care and an overall health update. So, I’m not sure how much you’ll glean from today’s post but I’m hoping the over all message will still educate or encourage you.
January of this year we were switched to a new insurance provider and had to get a new doctor for my migraine care. I was anxious in doing so because every time I see a new provider I get anxiety that they will either misdiagnosis me, not take my symptoms seriously, or even take me off medication that works and try something new. This anxiety comes from past experiences and is hard to overcome.
I’m grateful that although the new doctor is switching my migraine medication to something new to me (Ubrevly), she seemed very invested in helping me feel better. She has personal experience with migraine, having them herself, and she uses the medication she’s switching me too and loves it. I’m hopeful that it works for my migraines and that I’ll not have to pay an arm and a leg for it. I do have a coupon card for the prescription so we’ll see.
I’ve tried many prescriptions and though this last one I was on for several months did help to a degree, I didn’t like how the caffeine surge made me feel. It would keep me up all night and give me a huge boost of jittery energy. I also found out it is a narcotic. She said I would fail a drug test right now should I be given one. Obviously, that’s not a concern because I have no need for a drug test, but it did take me aback because I had no idea this whole time. (Not to mention I’d just prefer to not need a narcotic if I can avoid them.)
There’s going to be drawbacks to every drug you take for any ailment and I know that. There could be side effects to anything you ingest. It’s a matter of weighing the pros and the cons. And my migraine pain is far more concerning and life altering to me than the risk of at least trying a new med for chronic migraine. This prescription may or may not work. I may or may not have to try another one. But, I guess the whole point of this is to say that I had a good appointment with the new doctor, feel she is listening to me, and am hopeful.
It’s been a very long road with chronic migraine. I’ve gone from treating with Advil (which is hardly any way to treat migraine), to overusing Excedrine, which led to ulcers, to finally seeking medical help years later. I’ve learned that ice therapy works to help ease the pain, along side of medication. Those are my two favorite tools.
I think the hardest part of chronic or episodic migraine is how it pulls me out of life and into my bedroom for hours, and sometimes when the meds don’t work well, days at a time. Being hole up in a dark, cold, quiet bedroom with no screen time, ice on my head etc is not a great way to go about life. As a mother, it’s been especially difficult, even more so when they were little kids. I hate how debilitating they are and how much I do just to try and live through them. I also hate the judgement I can get. Like, why aren’t your pills working? Do you need to try a new prescription? Maybe this diet will help? How much worse can it be than a headache? If you have migraine, I’m sure you’ve heard this and much more.
I may never be cured of migraine. Just like I may never fully heal from Lyme disease. It just is what it is. I will continue looking for ways to cut back migraine, and ways to fight back the bacteria in my body. I won’t ever give up on that, but I have come to accept that these things may be with me forever. It’s actually not depressing to me to think this way. It was in the past but it’s actually empowering and freeing now. Instead of fighting every little thing, I now work on my joy, on perspective, on my grateful attitude… these are the things that get me through my hard life with chronic illnesses.
This was far too much to post on IG so I hope you didn’t mind this longer post on my blog to update you on how I’m doing with migraine and migraine care right now. I’ll keep you updated with how the new med goes. And any natural treatment I try to help combat the pain or frequency of the migraines. In the meantime, if you have personal experience with Ubrevly I would love to hear it. Drop me a line with any advice you have about taking it, your story, etc.
Hi, I’m Nell. First, I’m a wife and mother, and a believer in Jesus. I’m also a writer of words, maker of art, and chronically ill warrior. This space is where I document this one big beautiful and flawed life. Essays and diary entries, poetry and art, and peaks into my heart. Welcome.