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Yours Truly, Nell

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"I do what I can and am grateful for what my body

"I do what I can and am grateful for what my body allows me to do."

I used to have the strength, energy, and lack of pain necessary for scrubbing, deep cleaning, dejunking, and all the things that is required in keeping a home squeaky clean.

Now, my pain levels, burning and weak muscles, fatigue, and POTS symptoms get in the way.

I am the queen of tidying though and am so thankful that, in my large home with two levels, I'm able to pick up laundry, trash, and dog toys. I'm able to put dishes in the dishwasher, do endless loads of laundry, and wipe down countertops.

I don't get the tubs and floors and toilets as clean as often as I'd normally if I were healthy, but I do it enough to keep a clean enough home.

I'm sure many of you will understand this. I'm not a slob, and I don't like living in filth, so I keep things clean as I can, and I push myself to a degree, and my family pitches in but it's never as clean as I wish it were.

I know, I know - it looks so clean in the pictures. But, I hadn't swept the floors, vacuumed every room, scrubbed surfaces, and forget about handling the bathrooms today.

So, I do what I can and I have to be okay with that because I really don't have much of a choice.

I know so many chronically ill can't even do this much. And there was a time I couldn't either.

Truth be told, I really enjoy cleaning up my home. I enjoy keeping it clean. I enjoy walking into a room that has been tidied up and smells great.

I don't know what this rambling is even about, guess I just needed to get this off my chest.

Chronic illness has altered so much of my life, even how I can clean my home. I'm sure many of you can relate.

In the end, I do what I can - and I don't overdo it because I've learned the hard way that overdoing it can throw my body into a flare for days.

Do you have a system of cleaning up when you're sick and in pain and tired? I'd love some tips... yep, even 15 years into chronic illness, and 45 years lived on earth, and I'm positive I can still learn a thing or two.

A lazy and cozy day. Going to bed grateful but l

A lazy and cozy day.

Going to bed grateful but loaded with pain from Lyme (herxing) so had to take ibuprofen which I rarely do but have had two recent days where it was so bad I needed it just to take the edge off.

I’m super thankful for my cozy laid back life as it helps when I’m hurting so badly.

I canceled my neurologist appointment for this com

I canceled my neurologist appointment for this coming week and tentatively rescheduled it for January. Why?

I'm tired of being on this trial-and-error preventative meds dance I've been on for several months.

I honest to God need a break. I'm also in the process of deciding if I'll change neurologists or try out @neurahealth instead.

I have enough acute meds to get through the month, so I'm going to just take December to research preventative options, research my doctor options, and pray about trying Neura Health.

I'm frustrated by the process and, instead of just giving up, I think a small break will help my mental health and will give me the time I need to figure things out.

I feel like I may need more than one prevention method.

I have questions for you...

1. If you've tried Neura Health, what was your experience like? Was it superior to working with a neurologist?

2. Are you on more than one preventative and if you are did that help you more than simply one med for prevention?

Big decisions coming up.

Praying that God guides me.

Support is so important when you're living in pain

Support is so important when you're living in pain. I've found the migraine community to be quite helpful to me, and have seen them as supportive to one another as well. So much so that I've learned about medications I don't know I would have known about, have learned how to speak up for myself more with my doctor, have discovered tools for my migraine toolkit, learned about @neurahealth - which I'm strongly considering trying this coming year, made friends who get it, and so on!

If you're new to a migraine diagnosis, or if you've had migraine for decades but haven't found your people, or your community, yet, I really want this post to be helpful. And the best way I can think to do that is by introducing you to people who have been helpful in my life.

Below are people and products I think you should get to know. I hope this helps.

Morgan at @lifewithmigraine
Marina at @parentingwithmigraine (She also has an FB group that I find value in!)
Diana Lee at @dianaelee
Alicia at @thedizzycook
@migraineatschool
@daniellefoundation
Sarah at @mymigrainelife
Bernadette at @chronicaccounts
Shruti at @chronicallymeh
Shoshana at @shoshlipson (I love her FB group, linked in her bio)
Natalie at @mindfulnatalie (she isn't active lately but I'd still follow her for when she comes back. She's a huge inspiration.)
Julia at @lifewithjuliaside
Emily at @movementwithmigraine
@migrainebabe
@milesformigraine
Kelli at @the.migraine.dietitian
@migrainestrong
Olivia at @migrainemusings
Megan at @themigrainediary
@releafpack
@cefaly_official
@headachehat1
@soothiehoodie
@neurahealth
@migraine.buddy

I'm sure I'm missing some really valuable and important people in the migraine community and I'm so sorry if I am. I'd love to connect with even more advocates in the migraine community, so if that's YOU or someone you love to follow, I'd love for you to comment and let me know.

I hope this has been helpful! And thanks to all the people, organizations, and companies listed in this post for your service to the migraine community.

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